Saturday, January 28, 2017

2 Months Post Op and So Much Has Happened!

Today is January 28, 2017. We are exactly 2 months out from Emmie's major vascular surgery, with aortic patch, renal reconstruction and nephrectomy. So much has happened in the last two months. At times it feels like a roller coaster, so many ups and downs! Well let me tell you, I'm ready to get off the ride!

The biggest and most exciting good news we have is that Emmie has not started chemo!! We sat down with her oncology doctors the first week of January, fully prepared to hear the details of her chemo regimen. Instead we heard such amazing news. Truly an answer to prayer. "Emmie does not need chemo right now!" It seems that after reviewing Emmie's case in much detail, which included a meeting of the minds (where the entire oncology team sets down to discuss difficult cases, this is not the first time Emmie has been the topic of one of these meetings, and not the first time she has been called a "difficult case"), looking back through Emmie's scans that go all the way back to February 2010, and sending her records & pathology reports to a Wilms tumor expert in D.C., the conclusion was this.......
Emmie's Wilms tumor has likely been slowly growing on her left kidney since the age of one. In 6 years it had only grown to the size of a baseball, and never spread outside of that one tumor. We believe that God protected our daughter in ways only he can do. That portion of her kidney received very little blood due to the tiny thread like artery that was feeding it. Lack of blood flow, meant lack of growth. It also is what kept doctors from suspecting the "suspicious" looking upper pole was a tumor because her blood work never showed the typical signs they look for when cancer, or an infection, is present in the body. Wilms tumors are also typically diagnosed between age 2 and 4, and they are almost never seen past the age of 8. Given all of this info, the oncology doctors decided not to start chemo right away. We are instead, scanning Emmie every 3 months for the next 2 years. If something shows up, we will start chemo and radiation immediately. At the 2 year mark, as long as nothing has showed up in her scans, we will scan every 6 months until she has had 5 years of clear scans.

Its hard to put into words the feeling of joy I had when I found all of this out. It's also hard to put into words the gravity and weight I felt when I thought I was going to put my daughter through chemo. These are emotions a mother doesn't prepare for. You aren't given a manual about babies and kids when they are born, and if you were it certainly wouldn't include a chapter on "how to handle EVERYTHING when your child gets cancer" because you just aren't supposed to have to do this. But here we are, killing it!

In other news with Emmie.....

Her blood pressure continues to stay at a normal level, in fact lower than it used to be! She's averaging 97/54. We used to try to keep her around 110/70 and that was on 6 medications. Now she takes 1 BP med, and it is 1/2 the dose she used to take. We are hopeful that at her next appointment with her nephrologist, they will let her come off the med and see if it stays under 110.

Her blood clot is gone! YIPPEE!!! No more twice a day shots!

The renal stent that was placed during surgery was removed a week ago. She did fabulous during that procedure!

Her iron is low, which didn't surprise me. She did this after her first heart surgery too. She has a tendency to not eat a lot but drink a lot of milk. Too much milk and not enough food causes the milk to absorb the iron. So, she's taking an iron supplement, which is helping a lot with her energy levels. We are hoping her body will reset itself by April and she will come off the iron then.

Emmie went back to school! She made it through a full week of school this week! YAY! She's still on a lot of physical restrictions. She's not allowed on the playground, and she can't do PE class. But over all, she is doing really well! And I think she was even happy to be back in school! (If you know Emmie, you know she's a home body and wants to be home schooled! However, she missed her friends!)

Going forward, Emmie will continue to be seen by oncology for 5 years. We are praying for clean scans for 5 years! She will continue to have nephrology and cardiology checks every 3-6 months. She will also follow up with her surgeons in Michigan at the 6 month mark, and the 1 year mark.

The next major item up for Emmie is having the tether cord surgery, which will hopefully correct some of the scoliosis. That will probably take place in the fall. We have also started the genetic testing required to find out if Emmie has neurofibromatosis. If she does in fact have this, then there will be additional doctors and scanning done to check for other tumors. However, typically with NF the tumors are benign.

Even though I would like off the roller coaster ride, I know this ride is far from over. Emmie has a life time of ups and downs medically, and I will never leave her to ride alone. Just as God will not leave either one of us. Deuteronomy 31:6 Be strong and courageous. Do not be afraid or terrified of them, for the Lord your God goes with you; he will never leave you nor forsake you.

Thank you for reading, but more importantly thank you for the overwhelming support! We have had so many people bring food, help with kids, help financially, and praying for us, the support has really been a testament to God's people working together as the body, hand and feet of Christ. Thank you just doesn't even feel like enough! Please continue to pray for us as we move forward through all of this medical stuff! Pray for clear scans and answers for Emmie.
 Emmie at Riley Hospital the day we found out that she would not be doing chemo!

 Emmie with her daddy and sister, Elise, going to the Princess Ball
(AKA, daddy-daughter dance)

Emmie turned 8!!!! The magic number for Wilms tumors to not return!